Our News & Updates

Down Syndrome Medical Guidelines Published

The Global Down Syndrome Foundation Medical Care Guidelines for Adults with Down Syndrome are now available!

If you are a parent of a child with Down syndrome of any age, this is a must-read.

DSACO was part of these efforts of support to establish these guidelines, which are the first evidence-based guidelines for adults with Down syndrome. These guidelines will provide an important tool in a primary care setting, augmenting both evaluation and care previously based solely on a person’s age, gender, clinical symptoms, or the presence of known risk factors and other comorbidities. With the establishment of these guidelines, researchers now have the tools to increase research efforts related to Down syndrome. The Down syndrome research budget at the National Institutes of Health has increased from $27M in FY2016 to an estimated $113M in FY2020. Due to advocacy, excellent initial scientific results, and a focus on translational research at NIH, this trend is likely to continue.

This is just one step closer to figuring out how the extra copy of the 21st chromosome has an effect on individuals with Down syndrome. These guidelines will help further advancements in research and care.

In addition to the attachment, the guidelines will be posted on our website for your review.


If you would like a printed copy, please email [email protected] with your name and address.

This is just one of the many ways your donations and support helps DSACO reach national levels of advocacy. Thank you for all you do!


Sarah Soell
Executive Director