State & Federal Resources

Down Syndrome Association of Tulsa (DSAT)

P.O. Box 54877, Tulsa, OK  74155
Website: www.dsat.org

Support group to families of children with Down syndrome in Northeast Oklahoma
To contact DSAT about a new family, CLICK HERE

Family Voices of Oklahoma

Telephone:  (800) 766-2223, ext 56910
Website:  http://OKVoices.org

A newsletter for families and friends of children with special needs.

Lee Mitchener Tolbert Center of developmental Disabilities

801 NE 13th St., Oklahoma City, OK  73190
Telephone:  (405) 271-2131
Website:www.ah.ouhsc.edu/tolbert

National Down Syndrome Congress (NDSC)

1370 Center Drive, Suite 102, Atlanta, GA 30338
Telephone:  (800) 232-NDSC (6372) or (770) 604-9500
Website:  www.ndsccenter.org    
Email: [email protected]

Through advocacy and leadership be a major source of support and empowerment to persons with Down syndrome and their families.

NAtional Sown Syndrome Society (NDSS)

666 Broadway, Suite 810, New York, NY 10012
Telephone: (800) 221-4602 or (212) 460-9330; Fax (212) 979-2873
Website: www.ndss.org    
Email:[email protected]

Through education, research and advocacy, NDSS seeks to improve the lives of individuals with Down syndrome and their families.

Oklahoma Commission on Children and Youth

500 N. Broadway, Suite 300, Oklahoma City, OK  73102
Telephone:  (405) 606-4900 or (866) 335-9288

Website:  www.okkids.org


The purpose is to improve services to children by facilitating joint planning and coordination among public and private agencies; independent monitoring of the youth and children services system for compliance with established responsibilities; and entering into agreements to test models and demonstration programs for effective services.

Oklahoma Developmental Disabilities Council

2401 NW 23rd St., Suite 74, Oklahoma City, OK  73107
Telephone:  (405) 521-4984 or (800) 836-4470

Website:  www.okddc.org


This council helps to coordinate the efforts of state agencies and provides organizations in Oklahoma in meeting the needs of Oklahomans with developmental disabilities and their families.

Oklahoma Department of Human Services

Telephone:  Contact the Local County Office
Website:  www.okdhs.org/programs/programs.htm

Programs and Services to include:

SoonerStart (Early Intervention)                   
Developmental Disabilities Services Division
State Supplemental Payments                                   

Medical Services & Medicaid
Early & Periodic Screening, Diagnosis & Treatment

Oklahoma Family Network

Website:  www.oklahomafamilynetwork.org

Formerly SPAN and Neonatal Parents Network. Oklahoma’s Parent to Parent group that provides one on one parental support for families raising children with special needs.

Oklahoma Healthcare Authority

4545 N. Lincoln Blvd, Ste. 124
Oklahoma City, OK 73105

Telephone: (800) 987-7767 or (405) 522-7171 Oklahoma City Area

Website:  www.ohca.state.ok.us

Oklahoma State Dept. of Education Special Education Services

Telephone:  (405) 521-3351 or contact your local school district
Website:  www.sde.state.ok.us/home/defaultie.html

Individuals with Disabilities Education Act (IDEA), part B is the federal law that supports special education and related service programming for children and youth (ages 3-21) with disabilities and developmental delays.

Oklahoma State Department of Health

1000 NE 10th St., Oklahoma City, OK  73117
Telephone:  (405) 271-5600

Website: www.health.state.ok.us

Sooner Start

Telephone: (800) 426-2747
Website:  www.sde.state.ok.us/home/defaultie.html

Oklahoma’s early intervention program is designed to meet the needs of infants and toddlers (Ages Birth – 3) with disabilities and developmental delays.

Sooner SUCCESS

940 NE 13th St., Nicholson Tower Suite 3890
Oklahoma City, OK 73104

405-271-5700 x45180

Toll Free 1-877-441-0434

Website: http://soonersuccess.ouhsc.edu

Sooner SUCCESS is a community-based services available to any child, birth to age 21, with special needs. We connect families to information and services in their communities that will meet their child’s unique needs. Our goal is to serve, support, and build more inclusive communities.

Special Olympics – Oklahoma

Telephone:  (918) 481-1234 or (800) 722-9004
Website:  www.sook.org


Special Olympics Oklahoma provides a year-round program of sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities.

Supplemental Security Income

Telephone:  (800) 772-1213 or contact your local Social Security Office
Website:  www.ssa.gov


Social Security benefits for children with disabilities.

TARC

Telephone:  (918) 582-8272 or (800) 688-8272
Website:  www.ddadvocacy.net


TARC provided information, support, and advocacy programs for people with developmental disabilities throughout the state.

TEFRA

Tax Equity and Fiscal Responsibility Act states have the option to make Medicaid benefits available to children with physical or mental disabilities who would not ordinarily be eligible for Supplemental Security Income (SSI) benefits because of their parent’s income or resources are too high. For more information visit The Oklahoma Department of Human Services website here.

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