Mandi Kaiser experienced firsthand a void in the training of
modern-day medical professionals when her son Ty was born without a pre-natal
diagnosis of Down syndrome.
“When Ty was born he was immediately transported to NICU and I was
left by myself,” Mandi recalled. “The nurses wouldn’t look me in the eye and didn’t
know how to talk about Down syndrome. I definitely saw a gap that needed to be
Today, as a member of DSACO’s medical outreach committee, Mandi,
herself a registered nurse, is working hard to close that gap and make sure
that the next generation of doctors and nurses are better prepared to deal with
the situation her family faced.
goal is to get more exposure in the medical community about Down syndrome and,
ultimately, to change how doctors deliver the news to unsuspecting parents,”
Mandi admits that the road the DSACO medical outreach committee is
trying to pave has not been easy. Busy doctors and their staffs are difficult
to meet with in the everyday flurry of visits from pharmaceutical reps, vendors
and, of course, patients.
“We have met a lot of brick walls,” Mandi said. “But we will
remain proactive and persistent.”
In addition to her service on the medical outreach committee,
Mandi has also helped DSACO welcome new parents into the organization.
“I really enjoyed going out and meeting new families and assuring
them that they were not alone,” Mandi said.
As for Ty, Mandi said he stays busy with a long list of activities
that include swimming, basketball and helping take care of the two family pups.
In the future, Mandi hopes Ty continues in his athletic pursuits and has the
chance to further excel.
“We want something that he can own, call his own and gives him
another identify,” Mandi said. “And, like all parents, we want Ty to be as
independent as he can in the future.”